Driving "Fore" A Cure For PH Golf Tournament
The Driving "Fore" a Cure for PH Golf Tournament is held annually to raise funds and awareness to support PH
research and to help find a cure. The inspiration for this golf tournament is our 7 year old son Jackson, who was
diagnosed in August of 2012 with Pulmonary Hypertension (PH).
PH is a chronic, incurable, progressive, and life threatening lung disease that creates narrowing of the blood
vessels in the lungs, which causes additional strain on the right side of the heart. If left untreated, PH can lead to
failure of the right side of the heart. Within 48 hours of Jackson being diagnosed, we were told he wouldn’t survive
the disease and that he would eventually need a lung or a heart & lung transplant.
PH is often misdiagnosed as less severe conditions, such as asthma, due to the hidden/similar symptoms of PH.
Because it is often misdiagnosed, the disease continues to progress, and often patients are not diagnosed until it is
too late. Primary Pulmonary Hypertension (PPH) or Idiopathic Pulmonary Arterial Hypertension (IPAH -- what
Jackson has) is so rare in children that only 1 in 1,000,000 are diagnosed with the disease. Because of it being so
rare, even doctors do not understand the disease and treatments in its entirety.
After Jackson was formally diagnosed we began to speak with specialists at Duke Hospital and Boston Children’s
Hospital to create a plan on how to attack this disease. The good news is that we fortunately caught the disease early
enough where treatment is still an option. There have been some significant advancements on treatments of
Pulmonary Hypertension over the last 15 years, however, there is only one FDA approved treatment for children with PH.
The Sixth Annual Driving "Fore" A Cure For PH golf tournament will be held on November 2, 2018 at Riverwood Golf Course in Clayton, NC. Our goal is to raise $50,000 for research. 100% of the proceeds will go to the Robyn Barst Pediatric PH Research and Mentoring Fund to help find a cure for this disease and help provide hope for children with PH. There will be great food, gifts, silent auction, and of course a great day of golf. Registration is $125.00 for an individual and $500.00 for a foursome and includes golf, tee gifts, brunch, dinner, and golf shirt.
SCHEDULE OF EVENTS:
9:30 – 10:30 – Registration
11:00 – 3:00 – Golf Tournament (Brunch Provided)
3:00 – 4:00 – Dinner & Guest Speaker
4:00 – 5:30 – Silent Auction & Awards Ceremony
Thank you for your support!
- Matt & Jayna Wall